A shift in perspective…

Over Christmas, my 4 year old Eli got sick. We took him to the doctor where they stuck a swab up his nose (which he was of course thrilled about) and diagnosed him with Influenza B. This virus brought 6 days of very high fever which left Eli pretty miserable. Adults know that sleep helps…

What my daughter with Down syndrome has taught me…

When we think of ourselves as parents, one of our main jobs is teaching. We teach our children to dress themselves and tie their shoes. We teach them how to be kind and polite. At some point in our parenting journey, we realize that we are learning too. As a mom to a sweet almost…

Things I never want to forget…

I’ve been thinking that this should be a repeated post. Not sure how often, because clearly not the best at keeping up with things over here (though I’m trying!). There are so many things my kids do and say that I never want to forget, and by writing them down they will be memorialized! In…

Ivy’s Health Journey – Part 3

Remember when I said I’d be so good about keeping the blog updated… yahhhh… So jumping back to November of 2018… By some miracle, we were able to keep Ivy healthy for six weeks during cold and flu season while we waiting for surgery. We were blessed by so many helpful family and friends that…

Have the Conversation…

A couple months ago, something happened when I took my kids to the park. It was an experience that I have lived from another side. Experiencing it from this side, from the side of a special needs mama, it broke me. When I posted about it on social media, I learned that I was not…

Ivy’s Health Journey – Part 2

We had so much fun becoming a family of 5 over the summer. Besides being slow to gain weight, Ivy was doing well. She was so tiny and snuggly and I loved every minute of being her mom! Excuse me while I add too many pictures before I keep going with the story… In September,…

World Down Syndrome Day!

The date tomorrow is 3/21… World Down Syndrome Day! This day is officially acknowledged by the United Nations as a day to celebrate, educate, and advocate for individuals with Down syndrome. This particular date was chosen because it signifies the 3 copies of the 21st chromosome that people with Down syndrome have. People celebrate in…

Ivy’s Health Journey – Part 1

I haven’t been very good about updating the blog over the past couple of months! My goal is to chronicle our experience having a child with Down syndrome. The past several months since Ivy’s birth has been a big learning curve for me, trying to balance being a mom of three, working full time, and…

Down Syndrome Awareness Month… Why?

I’ve been wanting to write this post for awhile, but as is usual for me, I struggled putting words to my thoughts! Part of why I struggle to write, is that there are so many ways my brain wants to go and I have trouble figuring out how to organize it all! Please bear with me…