Defect. If you just sit with that word a minute, what images does it bring up? I’m guessing they aren’t the prettiest pictures. Defect. Defective. Those words mean imperfect. Faulty. Wrong. They aren’t neutral words. In fact they are quite negative. But that is a word that we use when talking about brand new lives…
Category: advocate
Down Syndrome Awareness Month…
Imagine a world where we didn’t need to have this month. Where a diagnosis of Down syndrome came with a big CONGRATULATIONS instead of I’m sorry and maybe you shouldn’t continue the pregnancy. Where the worth of people with Down syndrome was never questioned. Where they were supported and given all the therapies and medical…
Disability is not a bad word…
Before Ivy was born disability felt like a bad word. A scary word. I tiptoed around saying it. Those perceptions bled into my actions and thoughts about people with disabilities. It affected how I handled Ivy’s diagnosis. After Ivy was born, it became a sad word. I didn’t want it to be a word that…
My Incredible Ivy 