Can and will Ivy eat by mouth?

This is another question I get a lot that doesn’t have a super simple answer. Technically, Ivy can eat/drink by mouth. According to the one swallow study we got when she was 3 months old, she needs liquids to be thickened in order to drink them safely. Her swallowing muscles have always been very disorganized,…

Different types of feeding tubes…

Today’s feeding tube awareness is something that I definitely didn’t know before Ivy. There are many different types of feeding tubes! They are named based on where they enter the body and where the other end of the tube rests. NG/NJ tubes enter the body through the nose. G/GJ tubes enter the body right at…

Ivy’s Health Journey – Part 2

We had so much fun becoming a family of 5 over the summer. Besides being slow to gain weight, Ivy was doing well. She was so tiny and snuggly and I loved every minute of being her mom! Excuse me while I add too many pictures before I keep going with the story… In September,…