awareness, Down syndrome, inclusion, Ivy Joy, the lucky few, tribe

Have the Conversation…

A couple months ago, something happened when I took my kids to the park. It was an experience that I have lived from another side. Experiencing it from this side, from the side of a special needs mama, it broke me. When I posted about it on social media, I learned that I was not… Continue reading Have the Conversation…

Down syndrome, health, Ivy Joy, the lucky few, therapy

Ivy’s Health Journey – Part 2

We had so much fun becoming a family of 5 over the summer. Besides being slow to gain weight, Ivy was doing well. She was so tiny and snuggly and I loved every minute of being her mom! Excuse me while I add too many pictures before I keep going with the story... Forever Home… Continue reading Ivy’s Health Journey – Part 2

awareness, Down syndrome, faith, grief, Ivy Joy, milestones, prenatal diagnosis, the lucky few, therapy

When your child with special needs isn’t ‘proving them wrong’…

Bear with my titling of this post... I had a hard time figuring out the right wording. Read on before you judge! Also, this is one of those posts where I am sharing vulnerably. I'm opening myself up and letting people know some of those less than spectacular feelings that hide deep down. Because we… Continue reading When your child with special needs isn’t ‘proving them wrong’…

awareness, Down syndrome, inclusion, Ivy Joy, the lucky few, tribe

World Down Syndrome Day!

The date tomorrow is 3/21... World Down Syndrome Day! This day is officially acknowledged by the United Nations as a day to celebrate, educate, and advocate for individuals with Down syndrome. This particular date was chosen because it signifies the 3 copies of the 21st chromosome that people with Down syndrome have. People celebrate in… Continue reading World Down Syndrome Day!

birth, Down syndrome, Ivy Joy, prenatal diagnosis, the lucky few, therapy, tribe

Ivy’s Health Journey – Part 1

I haven't been very good about updating the blog over the past couple of months! My goal is to chronicle our experience having a child with Down syndrome. The past several months since Ivy's birth has been a big learning curve for me, trying to balance being a mom of three, working full time, and… Continue reading Ivy’s Health Journey – Part 1

Down syndrome, inclusion, Ivy Joy, prenatal diagnosis, the lucky few, tribe

Down Syndrome Awareness Month… Why?

I've been wanting to write this post for awhile, but as is usual for me, I struggled putting words to my thoughts! Part of why I struggle to write, is that there are so many ways my brain wants to go and I have trouble figuring out how to organize it all! Please bear with me… Continue reading Down Syndrome Awareness Month… Why?

birth, Down syndrome, faith, God, grief, Ivy Joy, labor, loss, miscarriage, prenatal diagnosis, the lucky few, tribe, twin loss, Willow Hope

My Story

I am one of those people who had her life planned out at age ten. Become a teacher, get married, have kids. And life pretty much followed. I went to Hope College, became a teacher in Allendale, married Sam, and had two kids - Zoe and Eli. Last summer, Sam and I decided it was… Continue reading My Story

birth, Down syndrome, faith, God, Ivy Joy, labor, prenatal diagnosis, the lucky few

Birth Story – Part 2

"For you created my inmost being;  you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made;  your works are wonderful,  I know that full well." Psalm 139:13-14 Ivy came with one push at 1:19 pm on July 5th, 2018. She cried immediately and was able to be put right on my chest. After… Continue reading Birth Story – Part 2

birth, Down syndrome, Ivy Joy, labor, prenatal diagnosis

Birth Story – Part 1

It's been awhile since I've had time to write... I'll blame that on the newborn currently sleeping on my chest! As you're all aware, our sweet Ivy is here and as I'm a sucker for a good birth story, I thought I'd write hers here. I'm including all the details (mostly for myself), so feel… Continue reading Birth Story – Part 1

Down syndrome, faith, God, Ivy Joy, prenatal diagnosis

Seek the Planner, Not the Plans

"'For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart. I will be… Continue reading Seek the Planner, Not the Plans