Grief. It’s such a tricky thing. At first there’s so much and it’s so heavy it feels like you might drown. It fills you up completely until it feels like there is nothing to you but grief. Every breath you draw hurts. You feel like you float through each day, existing in your world but…
Tag: prenatal diagnosis
Words Matter.
Defect. If you just sit with that word a minute, what images does it bring up? I’m guessing they aren’t the prettiest pictures. Defect. Defective. Those words mean imperfect. Faulty. Wrong. They aren’t neutral words. In fact they are quite negative. But that is a word that we use when talking about brand new lives…
Down Syndrome Awareness Month…
Imagine a world where we didn’t need to have this month. Where a diagnosis of Down syndrome came with a big CONGRATULATIONS instead of I’m sorry and maybe you shouldn’t continue the pregnancy. Where the worth of people with Down syndrome was never questioned. Where they were supported and given all the therapies and medical…
A letter to my typical children…
Dear Zoe and Eli… I saw your faces in my mind when the doctor said the life changing words, “Your baby does have Down syndrome.” My brain spiraled out in so many directions as the tears fell that day. What would her life be like? Would she live with us forever? Would she need open…
What my daughter with Down syndrome has taught me…
When we think of ourselves as parents, one of our main jobs is teaching. We teach our children to dress themselves and tie their shoes. We teach them how to be kind and polite. At some point in our parenting journey, we realize that we are learning too. As a mom to a sweet almost…
When your child with special needs isn’t ‘proving them wrong’…
Bear with my titling of this post… I had a hard time figuring out the right wording. Read on before you judge! Also, this is one of those posts where I am sharing vulnerably. I’m opening myself up and letting people know some of those less than spectacular feelings that hide deep down. Because we…
Ivy’s Health Journey – Part 1
I haven’t been very good about updating the blog over the past couple of months! My goal is to chronicle our experience having a child with Down syndrome. The past several months since Ivy’s birth has been a big learning curve for me, trying to balance being a mom of three, working full time, and…
Down Syndrome Awareness Month… Why?
I’ve been wanting to write this post for awhile, but as is usual for me, I struggled putting words to my thoughts! Part of why I struggle to write, is that there are so many ways my brain wants to go and I have trouble figuring out how to organize it all! Please bear with me…
Birth Story – Part 2
“For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.” Psalm 139:13-14 Ivy came with one push at 1:19 pm on July 5th, 2018. She cried immediately and was able to be put right on my chest. After…
My Incredible Ivy 