Today’s feeding tube awareness is something that I definitely didn’t know before Ivy. There are many different types of feeding tubes! They are named based on where they enter the body and where the other end of the tube rests. OG/OJ tubes enter the body through the mouth. NG/NJ tubes enter the body through the…
Category: Down syndrome
What my daughter with Down syndrome has taught me…
When we think of ourselves as parents, one of our main jobs is teaching. We teach our children to dress themselves and tie their shoes. We teach them how to be kind and polite. At some point in our parenting journey, we realize that we are learning too. As a mom to a sweet almost…
Have the Conversation…
A couple months ago, something happened when I took my kids to the park. It was an experience that I have lived from another side. Experiencing it from this side, from the side of a special needs mama, it broke me. When I posted about it on social media, I learned that I was not…
Ivy’s Health Journey – Part 2
We had so much fun becoming a family of 5 over the summer. Besides being slow to gain weight, Ivy was doing well. She was so tiny and snuggly and I loved every minute of being her mom! Excuse me while I add too many pictures before I keep going with the story… In September,…
When your child with special needs isn’t ‘proving them wrong’…
Bear with my titling of this post… I had a hard time figuring out the right wording. Read on before you judge! Also, this is one of those posts where I am sharing vulnerably. I’m opening myself up and letting people know some of those less than spectacular feelings that hide deep down. Because we…
World Down Syndrome Day!
The date tomorrow is 3/21… World Down Syndrome Day! This day is officially acknowledged by the United Nations as a day to celebrate, educate, and advocate for individuals with Down syndrome. This particular date was chosen because it signifies the 3 copies of the 21st chromosome that people with Down syndrome have. People celebrate in…
Ivy’s Health Journey – Part 1
I haven’t been very good about updating the blog over the past couple of months! My goal is to chronicle our experience having a child with Down syndrome. The past several months since Ivy’s birth has been a big learning curve for me, trying to balance being a mom of three, working full time, and…
Down Syndrome Awareness Month… Why?
I’ve been wanting to write this post for awhile, but as is usual for me, I struggled putting words to my thoughts! Part of why I struggle to write, is that there are so many ways my brain wants to go and I have trouble figuring out how to organize it all! Please bear with me…
Birth Story – Part 2
“For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.” Psalm 139:13-14 Ivy came with one push at 1:19 pm on July 5th, 2018. She cried immediately and was able to be put right on my chest. After…
My Incredible Ivy 